The co-design of an app-based monitoring and support model of care for patients on Home Enteral Nutrition (HEN)

The co-design of an app-based monitoring and support model of care for patients on Home Enteral Nutrition (HEN)

Jane Stewart¹, Karli Vanvitelli², Carrie Service³, Jess Price³, Kate Graham¹, Keryn Coster², Jenelle Loeliger¹, Heather Gilbertson², Hilda Griffin³, Julia Staples⁴, Kath Feely<sup>5,6,7

1</sup>Nutrition and Speech Pathology Department, Peter Maccallum Cancer Centre, Melbourne, VIC, Australia
²Nutrition and Food Services Department, Royal Children’s Hospital, Melbourne, VIC, Australia
³Clinical Nutrition Department, Royal Melbourne Hospital, Melbourne, VIC, Australia
⁴Parkville EMR Team, The Royal Children’s Hospital, Melbourne, VIC, Australia
⁵Allied Health, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia
⁶Allied Health, Royal Children’s Hospital, Melbourne, VIC, Australia
⁷Allied Health, Royal Melbourne Hospital, Melbourne, VIC, Australia

Abstract

Background:
Nutrition departments in Melbourne’s Parkville precinct manage a large volume of children and adults on Home Enteral Nutrition (HEN). An app-based patient portal within the Parkville Electronic Medical Record (EMR) has capacity to enable patients to receive interactive and individualised care and support remotely. This study aimed to 1) co-design a HEN remote monitoring and support model of care with patients and health professionals and 2) assess feasibility and clinical utility of the model in usual care.
Methods:
Key stakeholder consultation and three co-design workshops were conducted with patients, health professionals and EMR representatives to design the model of care. Evaluation will be conducted via surveys at three time points (baseline, two, six months) incorporating patient-reported outcomes, health and digital health literacy tools, the system usability scale, and UTUAT2 questionnaire. Focus groups with consumers and health professionals will be conducted at 6 months post implementation to further investigate outcomes.
Results:
A remote monitoring model of care that meets the needs of both clinicians and patients was co-designed. This includes the collection of clinical data with escalation of care as required; access to education resources; ordering of HEN supplies and requests for clinician call-back. Feasibility and clinical utility testing are underway following launch of the system in January 2023, with 27 patients enrolled to date.
Conclusion:
A new model of care to support remote monitoring and management of HEN patients has been co-designed. Evaluation of feasibility and clinical utility will offer insight into future use of this patient-centred model.

Biography

Jane is the clinical lead dietitian at Peter MacCallum Cancer Centre, Melbourne. She has worked as a clinical dietitian in a range of settings in both Australia and the UK for the past 20 years. Jane has a passion for improving the nutritional care of cancer patients and has been actively involved in the Victorian Cancer Malnutrition Collaborative program of work since 2016, which seeks to reduce the burden of malnutrition on patients with cancer.