What to include in an assessment of functioning for young children with neurodevelopmental conditions
Emily D’Arcy1,2,3, Kiah Evans1,2,3,4, Benjamin Milbourn1,2,3, Sven Bölte1,5,6, Sonya Girdler1,2,3,4,5 1School of Allied Health, Curtin University, Bentley, Western Australia, Australia2Telethon Kids Institute, Nedlands, Western Australia, Australia3Autism CRC, Brisbane, Queensland, Australia4School of Allied Health, University of Western Australia, Crawley, Western Australia, Australia5Department of Women’s and Children’s Health, Karolinska Institutet, Solna, Sweden6Centre for Psychiatry Research, Region Stockhom, Sweden
Abstract
The International Classification of Functioning, Disability and Health (ICF) Neurodevelopmental Clinician-Administered Assessment of Functioning (INCAAF) has been developed based on the ICF Comprehensive Core Sets for Autism, Attention-Deficit/Hyperactivity Disorder and Cerebral Palsy, and Code Set for Early Delay and Disability to assess the functioning of young children with, or suspected of, neurodevelopmental conditions. However, further validation of the items and scales to include in the INCAAF is required.
A modified Delphi process was administered, and Content Validity Index calculated with experienced clinicians to determine the items included in the INCAAF, and a mixed method survey used to collect feedback on the revised INCAAF scales. A total of 39 clinicians were invited to participate, with 25 completing all three rounds of the Delphi.
Of the comprehensive ICF Core/Code Set items, 66% were deemed relevant (or should be included but optional), 21% were deemed irrelevant, and 13% were undetermined. Feedback on the proposed scales was generally positive, suggesting further piloting with these scales would be appropriate, including collection of other stakeholders’ perspectives.
These findings will inform the next iteration of the INCAAF prior to further testing, and guide the content and concepts used in current clinical assessments.
Biography
Biographies to come.